EB Research Partnership

About EB Research Partnership

EB Research Partnership (EBRP) is dedicated to finding a cure for Epidermolysis Bullosa (EB), a rare and life-threatening genetic skin disorder, with the bold goal of healing and curing EB by 2030. They are pioneering a model to benefit over 400 million people affected by rare diseases, focusing on advancing life-saving treatments and cures for EB families globally.

Products & Services

Filsuvez:A treatment or product related to Epidermolysis Bullosa care.

Specialties

Epidermolysis Bullosa (EB) Research Rare Disease Treatment Development Venture Philanthropy Venture philanthropy EB research funding Clinical trials acceleration Rare disease cure development

Funding History

Debug: View Raw Funding Data

#	Type	Amount Fields	Date Fields	Investors
1	RT: Matching Gift T: - FT: Matching Gift	A: 1000000 MR: - FA: $1,000,000 FAN: 1000000	D: 2026-02-27 FD: 2026-02-27	1 investors
2	RT: Charity Fundraising T: - FT: Charity Fundraising	A: 2500000 MR: - FA: 2.5M+ FAN: 2500000	D: 2024-05-07 FD: 2024-05-07	6 investors
3	RT: Fundraising T: - FT: Fundraising	A: 5000000 MR: - FA: over $5M FAN: 5000000	D: 2023-11-14 FD: 2023-11-14	2 investors

Matching Gift Latest

2026-02-27

$1.0M

1 investor (Pro only)

Charity Fundraising 2024-05-07

$2.5M

Fundraising 2023-11-14

$5.0M

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Growth Metrics

+45%

Employee Growth

YoY

3.2x

Funding Growth

Last Round

12

Markets

Operating

10K+

Customers

Active

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Team & Leadership

J

Jill Vedder

CO-FOUNDER AND CHAIRWOMAN

E

Eddie Vedder

CO-FOUNDER

J

Jennifer Kauf

SECRETARY

E

Emily Kubik

TREASURER

N

Nathan Burmeister

BOARD MEMBER

D

Daniel Deshe

BOARD MEMBER

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